Former Royal Australian Navy Veteran. Specializing in support coordination for veteran NDIS members This is a higher level of support coordination. It is for people whose situations are more complex and who need specialist support. A specialist Support Coordinator will assist you to manage challenges in your support environment and ensuring consistent delivery of service.
Disability Risk Management
Prader-Willi syndrome
"Living with Prader-Willi Syndrome (PWS) presents a plethora of unique challenges, not least of which is the management of hyperphagia — an insatiable appetite that can lead to life-threatening obesity. A pivotal aspect of care for individuals with PWS is the implementation of astute risk management strategies within the home environment, with a particular focus on the kitchen and food storage areas such as the refrigerator.
​
To mitigate risks associated with hyperphagia, it is imperative to employ a multipronged approach that balances safety, accessibility, and autonomy. Our comprehensive risk management plan includes custom solutions such as installing locks on refrigerators and cabinets, utilizing portion-controlled food storage, and ensuring the availability of low-calorie, nutritious food options. We also advocate for consistent mealtime routines and the use of visual aids to support understanding and adherence to dietary regimens.
​
Beyond environmental modifications, we facilitate the integration of behavioral support strategies. These are designed to cultivate a relationship with food that prioritizes health and well-being, empowering individuals with PWS to participate in their own care and decision-making to the greatest extent possible.
​
By tailoring our risk management techniques to each household's unique dynamics and the specific needs of the individual with PWS, we endeavor to create a supportive home environment conducive to both physical health and psychological comfort. It is through this attentiveness to detail and dedication to individual empowerment that we can assist individuals with PWS and their families to navigate the complexities of hyperphagia with dignity and resilience."
Support Services
Providing support services to children 7 years and over for Assistance with Daily Life (core), assistance with, or supervision of, personal tasks of daily life to develop skills of the participant to live as autonomously as possible. We incorporate building models as the core element of 'development skills' . Mobile or in house, we have a lovely park across the road which incorporates exercise park, climbing facilities and nice walking paths.
​
Being former Royal Australian Navy, we learnt that by developing skills further enhances personal development but also help with keeping your brain active. Building model engines requires accuracy, reading, understanding, and finally 'working model', will what you have been taught, work in real life aspects.
We also do theme park days with clients.
​
Sports Coaching Therapy Supports 7 years and older. Having played football for over 25 years and doing Soccer coaching for individual participants aimed at adjustment, adaption, and building capacity for community participation. Sports Coaching Therapy also helps with a particular regime to maintain functioning of a body part or condition/disability.
​
Soccer is the perfect sport as it uses ball skills, kicking, passing, trapping, agility, balancing and more. One-on-One sessions for 1 or 2 hours, we make it fun, with a ball, but work on balancing skills, passing the ball accurately, power passing. We keep it simple and aimed at the participants owns skills and develop those further with Therapy support.
​
I'll also be coaching MiniROOS which is a few weeks away, and I will be building skills for the participants to the level so they can merge into the MiniROOS as part of the inclusive teams. This will form part of their community participation, engage in community, social, recreational or economic activities.
​
Your fun and outgoing sports dude is Sebastiaan, who has played football since he was 7 years old and has played semiprofessionally. Provided disability support for nine years and have a current blue and yellow card.
​
Former Royal Australian Navy Veteran - Communications I.T and intelligence branch. I have also completed the Special Olympics Young Athletes Coaching certification, and current Accessibility Champion which is supported by the Australian Sports Commission. I have always enjoyed sports, and wanting to pass on the skills and expertise i have developed throughout the years to the younger generation. I'm also a Pre-Service Teacher at University studying Bachelor of Education (primary school special Education).
Our
Story
Once upon a time, in the quiet corners of a life lived with equal parts resolve and devotion, there was a father who embarked on a journey unlike any other. His compass was his heart, and his destination was a world of understanding and compassion for his beloved child, who was born with Prader-Willi Syndrome and a Chromosome 16 microdeletion.
For a decade, I, this very father, have navigated the turbulent and often misunderstood waters of my child's unique condition. I witnessed firsthand the behavioral challenges and perpetual hunger that seemed to haunt my child, a condition known as hyperphagia that comes hand-in-hand with PWS. It was a daily testament to both our vulnerabilities and our strengths.
With the passing of each year, my resolve only strengthened. The nighttime quietude became my sanctuary for study, as the flickering candle of hope fueled my quest for knowledge. Medical journals became my maps, and the stories of others navigating similar paths became my guiding stars. I devoured research with the same fervor that PWS bestowed upon my child's relationship with food — but in my case, it was a hunger for answers, for understanding, for a way to lighten the load of the tiny shoulders that bore so much.
It wasn't easy. There were moments of crushing despair, fleeting victories, and poignant memories that wove the fabric of our lives. But through it all, a transformative tapestry began to emerge, rich with knowledge and intricate with the wisdom of experience.
In a labor of love and a testament to my journey, I penned my thoughts, struggles, and insights into a book, "Rare Threads: A Life With Prader-Willi Syndrome - A Unique Combination Of Two Separate Genetic Conditions & The Six Levels Of Disquietude." This tome is not merely a compilation of facts and data—it is a father's ode to his child, a narrative brimming with the intimate understanding that comes from a decade of dedicated caregiving, learning, and loving.
Through every page, I wish to extend a hand to those who find themselves on similar paths, to offer solace in shared experience, and to illuminate the passageways that once seemed darkened by the unknown. For though the journey is fraught with challenges, it is also lined with the rarest threads of joy and unconditional love, weaving a family tapestry that no condition could ever dim.
And so, as we continue on this path, I stand firm with all who understand this journey, holding onto the belief that with compassion, knowledge, and the will to face each day anew, we can unfold a future bright with promise for our extraordinary children.